tag:blogger.com,1999:blog-7457925939652856715.post2055774980034400031..comments2023-10-03T12:12:15.790-05:00Comments on Erika's Miracle Journey: Ouchy!!Erikahttp://www.blogger.com/profile/08515546833172495309noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7457925939652856715.post-18736516280091019442012-02-09T07:00:50.597-06:002012-02-09T07:00:50.597-06:00Erika- I am a 3 1/2 year BC survivor which is how ...Erika- I am a 3 1/2 year BC survivor which is how I happened across your blog. I am also your sister in Jesus!! When I saw that you had an EMG and then I read the words weakness and brachial plexus, I HAD to write you! My husband was diagnosed with Neuralgic Amyotrophy 8 months ago (sometimes called Parsonage Turner Syndrome). There is not much written about it and very little known about it except that they do believe it to be an auto immune disorder of varying causations. We still do not know what caused his reaction. He has paralyzed fingers now and weakness in both hands, fingers and left arm/shoulder. He goes to P.T. and O.T. nearly every morning before work....going on 9 months now. The prognosis is 2-5 years for full recovery and nerve regeneration. After I completed chemo (almost a year after) I had reaction in my lips and eyes of swelling (we're talking ridiculous deforming swelling) which after lots of testing and doctors and specialists was determined to be an auto immune response to CHEMO! The reactions would last 3-8 hours each time and eventually stopped after a couple of months. You can contact me at motherspreciousgems@comcast.net if you would like! I hope you are having a better day! Blessings-<br />Koryn~ Khttps://www.blogger.com/profile/06140262298991166174noreply@blogger.comtag:blogger.com,1999:blog-7457925939652856715.post-79656542897946006892012-02-07T21:43:37.528-06:002012-02-07T21:43:37.528-06:00Bless you Erika; your cross is heavy, but you are ...Bless you Erika; your cross is heavy, but you are carrying it with grace and showing others how it's done. :-)<br /><br />As for the EMG, I had one myself. Ouch doesn't really cover it, does it? :-P Peace, and hang in there!!!!fiona3637https://www.blogger.com/profile/12685562509113070997noreply@blogger.com