Showing posts with label Andrew. Show all posts
Showing posts with label Andrew. Show all posts

Monday, October 29, 2012

Three Long Years Ago...


What a difference three years makes. This time three years ago I was bald, pregnant, and living with breast cancer treatments. For Halloween, I painted my 8-month belly as a turkey in honor of the due date of my baby girl. That year's Thanksgiving was especially well observed by my family and friends as we welcomed my baby girl, celebrated her daddy's birthday, were amazed at our survival of a breast cancer diagnosis at 20 weeks pregnant, as well as enjoyed usual Thanksgiving traditions.

Two years ago, I was recovering from an emergency hysterectomy precipitated by an abscess formed during my oophorectomy a month prior. The oophorectomy was a preemptive move to avoid ovarian cancer that so often goes along with BRCA1 breast cancer genes. I also had the honor of being blessed with the gift of the Right to Life of Owensboro's Life Award for my pro-life and pro-woman journey through breast cancer while pregnant. My children were well on their way to charming anyone within distance of the two year old boy and almost one year old girl.

One year ago, I was in a hospital in Houston, TX recovering from my third reconstructive surgery. This third surgery was one of my last steps to completely overcome the obstacle of my journey with breast cancer. I had my modified radical mastectomy when my daughter was about three months old. However, the second surgery, replacement of the expander implants with regular implants, had the unforeseen consequence of causing further pain. In an effort to recover from the pain, I chose to have the implants completely removed and use my own abdominal fat tissue to reconstruct my breasts. The surgery was long, difficult, and painful, but resolved some of the pain issues. Shortly before this surgery, I was again honored. This time the honor came from the Kentucky Cancer Program. Rachel and I were selected to be representatives of the Faces of Cancer photography series.

Five months ago, I had my last surgery (I hope and pray) connected to my breast cancer diagnosis. This last surgery gave (Dr) Adams (back) my first rib. Again, this surgery was a last-ditch effort to resolve the pain that hadn't loosened its grip on me since my mastectomy.  I had finally been diagnosed with something "treatable" instead of chronic idiopathic pain. Although Thoracic Outlet Syndrome isn't truly "curable" it is treatable with surgery, physical therapy, and time.

Just this past week, I had my four month check-up with my oncologist. He gave me an all-clear for another four months. Although no one really thinks I'll be diagnosed with cancer again, these appointments make me very nervous. That same day I also took the opportunity to peek through an open window as the door closes on another aspect of my life. 

In less than a month, my miracle baby will turn three. Time really does fly when you're having fun. Both of my children give me such joy and are so much fun that time with them seems truly fleeting. As my children blur in photographs, so too do the misfortunes that have faced me, my family, and my friends these past three years.

Since my diagnosis that fateful July day, I have tried to live my life as if each day is my last. I praise God for all the wonderful people He surrounded me with through this difficult time. He also gets many thanks for the blessings of my two very healthy (some might even say robust) children. My husband and I know that we are triply blessed to have three sets of very active grandparents to help us care for our babies. We also offer thanks for our joining our lives as one. Above all, each and every day is an opportunity to praise God for the most important gift of all: LIFE!

Friday, November 25, 2011

2 years ago..

I was bald & 9 months pregnant. After our pre-meal, Andrew & I returned home. Around 1030 that night (the 25th), Andrew & I were rushing to Labor & Delivery because I was terrified that Rachel wasn't moving. They reassured me she was ok, but kept me anyway.

It was a sleepless night for me (Andrew fell asleep on the chair). By about 430 am, I felt the absolute worst contractions ever (MUCH worse than my 'induced' ones with Simon). Around 730 am Andrew's birthday present, Rachel Eleonore, made her arrival. Her big brother Simon came to see her along with my mom & dad, Andrew's mom, & Andrew's dad.

I repeatedly asked the doctors to check her very thoroughly to make sure my worst fears weren't fact. I was repeatedly assured that my bundle of joy was absolutely healthy & perfect. She had a little trouble maintaining body temperature & a touch of jaundice, but everything was well within normal limits. The chemotherapy that had saved my life hadn't affected her at all! As a matter of fact, she had as much or more hair as me!! We wore our matching hats (hand crocheted by me) for photos & even news stories.

Now it's been 2 years... So hard to believe. I'm cancer-free, but still not pain-free. Rachel is still amazing everyone: only now it's based on what she can do, not what she survived. Simon & Andrew are still pleased with their girls!

On their birthday, we are going to celebrate Andrew's 31 years & Rachel's 2 years. We're having a Cowboy & Cowgirl themed birthday lunch. It's been a wild ride, but we've stuck out past the timer. Yee-haw!

Saturday, October 1, 2011

26 days and counting... Help needed





Today is the beginning of Respect Life & Breast Cancer Awareness month. October is *my* month, in my opinion, because I've blended the two so well. I respected life (both mine & my unborn baby's) as I fought breast cancer.
The problem is that as much as I wish my journey was complete and I was back to 'normal', that is not the case. In 26 days, I will be going under the knife again. This will make the fifth surgery I've had since my diagnosis. This will be the 2nd attempt to make my reconstruction pain-free. Most breast cancer journeys shown on TV show a woman who is diagnosed, seeks treatment, recovers, & goes on with life with little problem. That is a tremendous understatement of real-life scenarios. I know I'm not the only one who has continued to suffer from their diagnosis long after the rest of the world assumes healing is complete. Few people can understand the overwhelming disruption to life in general. Things that used to be stepping stones become milestones. Life does not simply begin again where it was prior to the diagnosis. I've not stepped into anyone else's shoes, but I know that my journey has been fraught with issues that have ultimately affected every aspect of my life.

With the continued problems (constant pain, numbness, and tingling in my chest, shoulders, neck, and arms) that I've had beyond the extended leave for big issues (chemo while pregnant, more chemo after delivering a healthy baby girl, bilateral mastectomy with immediate expander reconstruction, ovary removal with serious complications, emergency hysterectomy, and 2nd stage reconstruction with implants), I have used all the time I have accumulated myself by going to various doctors as attempts to solve my continued issues. I've been to 2 plastic surgeons, a pain management doctor, my regular doctor, my oncologist, and had various tests run as well as having the assorted illnesses that come with stresses on the body -- migraines, stress headaches, stomach bugs, flu-like symptoms, etc. This will be the fourth time I will be off work for an extended period of time. The people of the great state of Kentucky -- my co-workers and other state employees -- have previously dontated their own sick time to ensure that my family can continue to be supported. At this point, I hesitate to ask (beg) for more donated time since I have received so much. However, I must ensure my family's continued welfare. I am the bread-winner of the family -- all income and insurance comes from my pay-check. Andrew (my husband) has been incapacitated with a debilitating back condition. The doctors can't do much beyond giving him pain medication. He even had to close his shop. As anyone with children knows, they're expensive! ;-) So we have more outgoing funds than incoming.
This next surgery is going to be significantly more involved than my last surgery for reconstruction. We're driving down to Houston on October 25th since my pre-op appointments begin in the morning of the 26th. My surgery is on the 28th. The doctor's estimate is a full week in the hospital following surgery. Then we're planning on about 4-7 days further in Houston for a follow-up appointment before returning home. The drive home will likely take at least 2 days since I will be incredibly tender from the long surgery. Then there will be the recovery time -- 6-8 weeks total (including the week in the hospital). During that time I will be unable to work or do much of anything. I am terribly concerned and anxious about how we will be able to afford all the time off I need to heal properly verses the amount of money all this will take.

I hate asking for a hand-out from anyone in these hard economic times. I hesitate to ask the workers of the state of KY to donate any more of their time -- especially since we all "donated" furlough days to the state last year. I hesitate to ask anyone's help. However, if there's one lesson I've learned during my illness, it is to ask for help when you need it. I need it now. I'm adding a PayPal button* to this blog in the hopes of getting some financial help for this (hopefully) last leg of my journey to wellness. There is also still a local account (Owensboro, KY) at PNC Bank that is named Erika Vandiver's Medical Fund. Asking this of you, my online supporters, gives me a sick feeling in the pit of my stomach. I know so many of you have your own struggles that you deal with daily. I also know that you have lifted me up with thoughts and prayers through this long journey. Your prayers and thoughts have been greatly appreciated and I hope to continue to receive them. However, there is little to be gained by not asking for help when it is needed. Help is needed.

*The PayPal account I'm using is Andrew's. I'm not very active with eBay or PayPal, so my account is quite limited and does not have a debit card for easy access on the road. His email address is MrFixIt@connectgradd.net -- that will probably be the header for the PayPal donation page. For bank statement purposes, the description for the transaction will appear as ERIKAS FUND. Again, thank you for your donation, prayers, and/or thoughts!

Sunday, March 28, 2010

My apologies & appreciation!

I'm sorry for the downer post yesterday. I was feeling really down. I think it worked out ok today though. I'm still not thrilled w/ my new body, but I have a little bit of a better understanding right now of 1) why I felt that way last night & 2) that even if *I* hate my body, no one else sees it like I do. Andrew (and lots of others) were very sweet to me last night! I really appreciate it.

I'm still feeling bad (hurting a lot) right now, so I'm actually going to send both the kiddos to my mother-in-law tomorrow. That's a first EVER! Hopefully I'll feel better by Tuesday - they both have doctor's appointments.

Wednesday, March 24, 2010

Another night in the ER

Yep, we spent another night (very early morning) in the ER... It wasn't for me though - it was for my husband, Andrew. He has a kidney stone. He was huffing & puffing, moaning & groaning the entire trip into the hospital. I've heard kidney stones be compared to childbirth for men, so I figure he was very much in pain. They actually got to him really quickly and even dosed him with pain meds fairly early into our visit. We arrived around 1 am and left around 345 am. Not too bad considering some previous visits we've had were well over 4 hours...

Anyway, they sent him home w/ prescriptions for pain, nausea, and swelling (Flowmax to be exact) and a little funnel sieve to catch the stone when it comes out. He's spending a lot of time sleeping (all the drugs have that side-effect). I keep waking him up to drink and/or pee to get that thing GONE! Hopefully he'll be feeling better soon.

Simon & Rachel appear to both be on the mend. Both have snotty noses (probably allergies). Simon coughs at night some, but doesn't wake himself up like he was doing. Rachel's rash seems to have already responded to the cream, but before the next time for her rub-down she's itchy & fussy again. Of course, she's also completely made both her fists chapped by chewing on them b/c she's already teething. By this time Simon had already cut a tooth I think. However, they're doing pretty well.

I'm *really* tired. I was driver last night & I have a phobia about being in the ER for a serious reason alone w/ only the patient - especially it seems if intense pain is involved. I had a flash-back to my time in college w/ my then boyfriend (later fiancé). His trip did not turn out well... I was alone w/ him until his parents could arrive & witnessed some of the most tremendous pain in an individual that I think I've ever seen. I was 20, in the middle of finals week before Christmas, and watching my boyfriend writhe in pain. Not a good place to be or a good memory. It seemed to have been set off last night by the sight of skinny hairy dark-skinned legs poking out of a hospital gown while the owner of said legs suffered pain that I could do nothing to fix. I tried to not let it bother me, but by the end of the night I was stretched to my limits & even though Andrew was feeling much better (thanks to IV Dilaudid & Toradol) by the time we left, I was beyond stressed.

Right now stress does funny things to me. For one it makes me much more emotional than ever before. I don't know if its b/c I've been exposed to so much lately that its made me more sensitive instead of desensitizing me. Or if its because I've been told so often that its ok to be emotional and to be sure to share it with those that love me. Anyway, since I had to be strong while we were at the hospital & on the drive to & from, I internalized it all like usual... My breathing gets really shallow, my chest tightens, my shoulders round, my jaws clamp, and I slump forward. The problem with that right now is that these rocks on my chest don't like chest tightening - they take up too much space and aren't flexible enough, plus there's still some healing going on in there from the vigorous scraping they did during surgery. These rocks also don't like when I round my shoulders &/or slump forward. Again, its a space and flexibility issue as well as tenderness from a still healing chest wall.

I kept having to tell myself to take deep breaths, sit up straight, and keep my jaws relaxed. Andrew noticed & kept asking me what was wrong. While we were in the hospital or in-route (to or from the hospital), I couldn't risk telling him - he needed me to be strong since he was concerned it could be more serious than simple kidney stones. So I used the standard "nothing" answer.

Once we got home he cornered me (he was feeling no pain thanks to wonderful IV pain meds) and asked me what was wrong. Even though sometimes I suspect it hurts him for me to mention my late fiancé (for several reasons, he's said its hard/impossible to compete w/ a dead man, he knows there's nothing he can do to erase the pain for me, and he's reminded that we could have never been thrust together), I told him how hard it is for me to be the only one there when there's a serious issue b/c it reminds me of my past. That past to me feels like a failure even though I know there's nothing I could have done to combat my late fiancé's melanoma in his brain. Its irrational, but emotions generally are irrational. Being the sensitive guy that he is (those of you that've met him probably don't see this aspect of him, but its true for me & the kids) he reassured me that he was ok and would be ok. We 'made-up' as it were by talking a little bit and hugging/holding a lot.

That hugging/holding got my right tissue angry... As I said yesterday the scab is formed upside down right now, so it catches on everything. I thought I'd designed a really good form of padding for it to let it air-dry, yet not risk being caught on something & torn off. However, the down-side is that I can't feel my entire breast - much less this tissue. So in my insecurity as we slept holding one another, I apparently put too much pressure on it. When I woke up there was a pretty deep depression all around the troubled tissue and the gauze that wasn't supposed to touch it was stuck deep in it. It took most of the day - including a hot shower (to get all the fibers out), some air-drying as well as blow-drying - before the tissue appeared normal again (ie, not depressed). However, one of the times I went to check it, as I pulled my shirt away some tissue on the bottom side pulled away and made it bleed. Bleeding is theoretically good b/c that clearly shows good circulation. However, bleeding is bad when you have a very sensitive 4 year old girl (Abby my niece) and 2 year old boy hovering around. So I found some 'non-stick' gauze & will be trying it now. I hope on Friday that Dr. W clips some of the loosened scab so there's less to catch on stuff. I'm going to point out that in my opinion the risk far outweighs the possible benefits of keeping the scab intact. Especially from where I'm sitting now!


My Chemo-Jane hair-style

My Chemo-Jane hair-style
I just had to have my mom buzz my hair because it was falling out so badly.

Pre-op wearing my hand-crocheted cap with my prayer shawl.

Pre-op wearing my hand-crocheted cap with my prayer shawl.
My loving husband is watching me distract myself with a game on his iPhone.

2 days after my BMX w/ 100ccs in the TEs

2 days after my BMX w/ 100ccs in the TEs
I even have a fashionable belt to hold up my drains.

3 weeks post-op w/ 400ccs in each TE

3 weeks post-op w/ 400ccs in each TE
The smile is fake because the TEs were irritating!