Friday, July 9, 2010

The waiting is KILLING me...

I'm hoping that statement is only figurative, not quite literal. I'm worried that if I wait too long it *will* be literal though... I'm SO frustrated right now. I got rejected in Houston, my local oncologist says I should have the surgery anyway, so I call my local ob/gyn first thing yesterday morning. I'm waiting on a call back to see if she'll do it... Since I haven't heard anything from her yet, I call her office... They're CLOSED until Monday! I know this is her regular day out of the office, but I just want to know one way or another...

At work we also just got the 'official' word that furloughs are definitely going to be required for state employees. That means that we're going to be forced to take a certain number of days off without pay. Not to mention that the budget shortfall is making them mess with our retirement benefits. Of course, the private sector people think our benefits are so awesome... Well, they used to be, but now we're really just average with a little better retirement/insurance. However, our salaries are generally *lower* than other states as well as private sector jobs in our field. For instance, in Henderson, NV (or really almost anywhere, but here) if I had this same exact job, I'd be making at least $10,000 more per year. So in order to stay close to my family, I thought the benefits of state employment would out-weigh the lower pay. However, it looks like when its time for me to retire (if I make it that long) the retirement plan will no longer be in place. I think its set to run out of money in 2013.

So basically, since our legislators/governors/etc can't balance a budget & keep to it, us 'little people' are going to suffer. You can bet your bottom dollar that they're not going to suffer from this... When they're re-elected they'll throw out perfectly good office furniture & such to order new for themselves. They'll give themselves raises every year while our 1% increment has been denied to us for at least 2 years. They'll spend money wining & dining lobbyists & themselves, but they forget they're sometimes taking food from the tables of hard-working state employees (not to mention tax-payers). They'll give money to people who have no jobs - some through their own faults (drugs, convictions, etc) - but not help those who work for a living.

Aaaaaaaaaarrrrrrrrrrggggggggggggghhhhhhhhhh!!!!!!!!! This has been a *really* crappy week...

Wednesday, July 7, 2010

A year has passed...

Well, I'm not in a super good frame of mind right now. I'm back to work & trying to keep busy. However, I keep thinking about the past year & where I wanted to be by now.

This time last year I was being strapped to an operating table without anesthetic for my biopsy. I could hear, feel (a lot more than I wanted), and smell the surgeon taking the lump out of my breast. I could feel Rachel (although I didn't know she was a she yet) swimming around in my tensed abdomen. I can still remember the disbelieving expression on the surgeon's face as he told me, mom & Andrew that the lump he removed was cancerous.

It probably doesn't make sense to everyone why I'm making such a big deal out of this. I mean, another month or two really isn't supposed to matter that much. However, I've got some bad feelings. I'm haunted by the fear that my body is going to betray me again & I'll have cancer (ovarian this time) if I don't hurry up and remove the appropriate tissue. I'm also worried that I'm going to lose my nerve to have this surgery. There's also the increased risk of becoming pregnant (and most likely miscarrying) during this dangerous time. I'm going to mourn the loss of my fertility, but there are definitely benefits to that loss - some of which only another woman with problems like mine can fully appreciate. Not to mention I was really looking forward to having my real foobs as opposed to these uncomfortable & ugly expanders. All in all, this surgery was about actually *improving* my life as much as it was about preventing cancer. Its also difficult for me with my obsessive-compulsions to get over the fact that my tidy schedule has been irrevocably ruined. I want to see the end of this cancer monster that has not left my mind since this day a year ago. I want to know I've done everything in my power to eliminate this monster from my life once & for all.

I was hoping that by this time this year I'd have all this behind me. I was working really hard to attain that goal. Sadly it didn't work. I'm still just as unsure about the future as I was then. I'm still as nervous, scared, and worked-up as I was last year. The biggest difference is that now I have a 7 month old Rachel instead of a 20 week embryonic Rachel. I just want to be finished with this scourge called cancer. I want my life to go back to normal. I just want to be normal. If wishes were horses, beggars would ride... :-(

Friday, July 2, 2010

Failure...

Well, I guess technically I didn't fail, but my bloodwork sure did. I spent the most miserable birthday ever all for nothing. We drove to TX all night on the 30th. I felt nervous & sick so I mostly tried to sleep. That left me sore & groggy when we arrived at 7am the 1st. Then since all of us we feeling groggy we slept all day. I seem to have caught a slight bug, but figured it wouldn't matter. Got to the hospital bright & early this morning met with both doctors who couldn't wait to operate then did diagnostic tests. One of the most uncomfortable & humiliating of which had to be done twice due to computer issues. As if that wasn't bad enough after we left the hospital I get a call from my main surgeon. The bloodwork showed my white bloodcell count to be 3.5 instead of a normal 4. That completely disqualified me for both of my "unnecessary" surgeries... The whole reason we drove all this way. I'm not mad I'm just so deeply disappointed and unhappy that I can't seem too get over it. This is way worse than finding out I had to have implants instead of my own tissue. I know I'm not likely to have any complications because of this wait, but I feel like my life is once again on hold because of this stupid cancer. Not to mention that the low WBC count could have a more sinister cause than left-over chemo. So now I still have a sword of Damoclese hanging over my head. We're leaving 1st thing tomorrow morning. Yippee another 900 mile journey only this time for nothing. :-(

My Chemo-Jane hair-style

My Chemo-Jane hair-style
I just had to have my mom buzz my hair because it was falling out so badly.

Pre-op wearing my hand-crocheted cap with my prayer shawl.

Pre-op wearing my hand-crocheted cap with my prayer shawl.
My loving husband is watching me distract myself with a game on his iPhone.

2 days after my BMX w/ 100ccs in the TEs

2 days after my BMX w/ 100ccs in the TEs
I even have a fashionable belt to hold up my drains.

3 weeks post-op w/ 400ccs in each TE

3 weeks post-op w/ 400ccs in each TE
The smile is fake because the TEs were irritating!