Showing posts with label Catholic. Show all posts
Showing posts with label Catholic. Show all posts

Monday, October 29, 2012

Three Long Years Ago...


What a difference three years makes. This time three years ago I was bald, pregnant, and living with breast cancer treatments. For Halloween, I painted my 8-month belly as a turkey in honor of the due date of my baby girl. That year's Thanksgiving was especially well observed by my family and friends as we welcomed my baby girl, celebrated her daddy's birthday, were amazed at our survival of a breast cancer diagnosis at 20 weeks pregnant, as well as enjoyed usual Thanksgiving traditions.

Two years ago, I was recovering from an emergency hysterectomy precipitated by an abscess formed during my oophorectomy a month prior. The oophorectomy was a preemptive move to avoid ovarian cancer that so often goes along with BRCA1 breast cancer genes. I also had the honor of being blessed with the gift of the Right to Life of Owensboro's Life Award for my pro-life and pro-woman journey through breast cancer while pregnant. My children were well on their way to charming anyone within distance of the two year old boy and almost one year old girl.

One year ago, I was in a hospital in Houston, TX recovering from my third reconstructive surgery. This third surgery was one of my last steps to completely overcome the obstacle of my journey with breast cancer. I had my modified radical mastectomy when my daughter was about three months old. However, the second surgery, replacement of the expander implants with regular implants, had the unforeseen consequence of causing further pain. In an effort to recover from the pain, I chose to have the implants completely removed and use my own abdominal fat tissue to reconstruct my breasts. The surgery was long, difficult, and painful, but resolved some of the pain issues. Shortly before this surgery, I was again honored. This time the honor came from the Kentucky Cancer Program. Rachel and I were selected to be representatives of the Faces of Cancer photography series.

Five months ago, I had my last surgery (I hope and pray) connected to my breast cancer diagnosis. This last surgery gave (Dr) Adams (back) my first rib. Again, this surgery was a last-ditch effort to resolve the pain that hadn't loosened its grip on me since my mastectomy.  I had finally been diagnosed with something "treatable" instead of chronic idiopathic pain. Although Thoracic Outlet Syndrome isn't truly "curable" it is treatable with surgery, physical therapy, and time.

Just this past week, I had my four month check-up with my oncologist. He gave me an all-clear for another four months. Although no one really thinks I'll be diagnosed with cancer again, these appointments make me very nervous. That same day I also took the opportunity to peek through an open window as the door closes on another aspect of my life. 

In less than a month, my miracle baby will turn three. Time really does fly when you're having fun. Both of my children give me such joy and are so much fun that time with them seems truly fleeting. As my children blur in photographs, so too do the misfortunes that have faced me, my family, and my friends these past three years.

Since my diagnosis that fateful July day, I have tried to live my life as if each day is my last. I praise God for all the wonderful people He surrounded me with through this difficult time. He also gets many thanks for the blessings of my two very healthy (some might even say robust) children. My husband and I know that we are triply blessed to have three sets of very active grandparents to help us care for our babies. We also offer thanks for our joining our lives as one. Above all, each and every day is an opportunity to praise God for the most important gift of all: LIFE!

Monday, November 14, 2011

Faith

Through Faith I know that God cares for me. I know He's counted the hairs on my head. I know He's offered to shoulder my burdens. However, I can't help feeling that I'm so deep in this whole that I cannot be saved. I need to let go & let God, but that is incredibly difficult.

FYI: This is not with regards to my health, just the worldly consequences of my long struggle... In other words $ -- the root of all evils & the necessity for today's life.

Wednesday, October 5, 2011

23 days to go & I'm already a ball of nerves


This is my creation for a blog I
contribute to called Catholic Sistas
 for Respect Life/Breast Cancer awareness month
 If I wasn't afraid I'd lose my curls, I'd be pulling my hair out over my upcoming surgery. << That is my weak attempt at humor for this post.

For some reason this surgery is causing me more stress than ANY of my others (that I remember). I think at least a portion of the stress is caused by vanity. I have nightmares of waking up with gaping holes in my chest while the doctors just shake their heads and say, "It looks fine." Really though, I know that is the least of my concerns. I know this surgery is fundamentally more risky than my previous surgeries. Even the bilateral mastectomy was less of a risk simply because its pretty simple to amputate. The difficulty comes in trying to transplant to an area already fraught with inflammation and scar tissue. Part of the difficulty is rooted in the vanity side of the operation -- afterall the entire purpose of this type of surgery is to *look* normal. However, infection of both the donor site (my belly fat) or transplant site (the new foobs) is a significant possibility. Its also possible for the transplant to just not 'take'. I'm also paranoid that going this drastic is not going to affect my pain levels significantly. Well, I *KNOW* the surgery is going to immediately cause an increase in pain level. The chancy part is whether my chest, neck, shoulder, & arm pain will decrease, stay the same, or even possibly increase. The true purpose of this (final?!?!) surgery is to relieve my pain, but so far, no one is willing to give me odds on a positive outcome.

Another aspect of this surgery that I've hinted (ok, ok -- I outright asked/am asking for donations) is the financial considerations. In my previous post, I outlined that I am the *only* income for our household of 4. My husband & I figured it out last night: by the time you subtract the mortgage & my gas money to commute to work, we have approximately $250 per person for the entire month. That has to cover groceries, car insurance, diapers for two large kids (Simon's pretty good during the day, but nights are a whole 'nother story), toiletries, medical needs, incidentals, and the unexpected costs associated with life and having 2 worn out vehicles ('88 Ford Turbo Coupe & '95 Jeep Grand Cherokee). Even with coupons & savings cards, our grocery bills typically reach $200 twice a month. Then you have to factor in getting *to* the grocery store when driving aforementioned worn out vehicles. I didn't realize it as much when Simon was younger, but diaper boxes really do contain a whole lot less the larger the child. To be completely honest, things have gotten so bad that Andrew & I are taking steps toward bankruptcy. I wake up every morning for work and feel nothing but dread; not necessarily because I hate my job, but more because I know I'm stuck working to *barely* support my family. When I sleep my dreams are populated with the horrors of surgery (including my death) as well as financial ruin (my family being homeless). That makes for a bad attitude, panic attacks, and exhaustion (even though I know perfectly well that my extended family would never let us be homeless or go without necessities).

Going through this surgery requires me to put a LOT of faith in my doctors and our Merciful God. I'm not very good at turning the reins over to another. Hence the panic attacks, hot flashes, and overall flipping out I've been doing lately. I've always felt like I need to protect others from unpleasantness. I hold my emotions in so someone else can have me as their support and/or so someone else doesn't have to support me. I work really hard to try to reassure everyone that everything will be ok. My cheerful facade is just that -- a facade. It's no more real than the old-timey movie sets in our favorite movies.

Sometimes I can trick myself into believing my facade is my truth. Then something happens to reveal a crack. The crack slowly becomes larger & larger until I feel like I can no longer withstand the whirlwind of emotions coming toward me. I've been told to "let go and let God." Oh, how I wish it was that easy! I pray to God to lift the burden from me. I've been told, "Just like the footprints in the sand, God will carry you if you'll just let him. He already, is in fact." I turn around to look, but instead of footprints at all, all I see is the whirlwind obliterating all the progress I've made. I look at the image of Christ on the cross and I Faithfully know that my burdens and sins were nullified by His Act of Sacrifice. However, I can't help but also see the cross I'm carrying and nailed upon. Christ's was the Ultimate Sacrifice for me and you. However, when the winds overwhelms me (us?), it is so difficult to see how His Selfless Act could *really* take away my sufferings. Maybe I'm looking at it wrong. Afterall, Christ did tell us that we had to pick up our cross and follow Him. Maybe I have picked up my cross, but I'm not yet to the path in the road where Jesus takes my "yoke upon His shoulders". Maybe its because I'm willfully (even if subconsciously) turning from His path by pridefully creating my own.

Even as I type this, I know that without Christ's help I'd have already succumb to my life's troubles. So, even as I question myself and God, I Faithfully *KNOW* that He is watching over me. I'm in that odd state of acknowledging God's help but still requiring so much more. Neither the grief counseling books nor the cancer help books have accurately described this place I feel I'm in. I don't doubt God nor do I blame God. I don't ask Him "Why", but I also don't ask Him often enough for help. I'm not angry or belligerent. I know that somewhere inside this mess of my life is a message from Him to me and to everyone who has been touched by my life. I just can't see that message to me. I can see the message to others and that's another reason why I have such a cheerful facade. I want everyone to know that it *IS* possible to keep the Faith while going through trials. I want everyone to know that it *IS* possible to carry your child to term and receive treatment for cancer. I want everyone to see the positives of my situation -- not the negatives. However, behind the facade the negatives build.

This, my journal, is a release of these tumultuous emotions I have. Althought I'm speaking "to" an audience (you my readers), in reality I am speaking to myself. I am reassuring myself that if I can put my troubles in black & white (well, my draft is black & white) then there *must* be a way to resolve them. Plus, an outpouring of the Holy Spirit from your prayers is ALWAYS a welcome addition to problem solving!

Wednesday, August 24, 2011

Trade Tears for Fears or Are They One & the Same?

It seems like all I ever do is whine lately. I apologize for that. The sad fact is that I actually do feel worse now than I did 2 years ago pregnant & doing chemo. Back then I at least had the comfort of knowing this phase was transitory & at the end (well, middle of chemo) I would have a beautiful baby girl to cuddle. I was also not stretched so thin between work, home, & health -- nor were my chest muscles stretched so thin. I'm still waiting to hear from MD Anderson about getting a consultation with a plastic surgeon there. The pain and strain continues to build.

Yesterday was a horrible day for me. I spent almost a solid 4 hours crying. I wasn't just crying to myself -- no I had to go & cry in front of the receptionists at the doctor's office, random people at the doctor's office, my direct supervisor, my co-workers, my husband, AND my mom all at different times. For the record: I DO NOT CRY. If I'm crying then the world as I know it has come crashing down upon me. To the outside observer it seems like a simple mistake or a casual dismissal. However, to me it is the straw that broke the camel's back.

My tears yesterday were of pain, frustration, disappointment, fear, stress, and exhaustion. One of the biggest factors is fear though. Almost all the other reasons I cry are based on fear. I'm afraid that I'm just going in circles (frustration). I'm afraid that I'm not taking the right steps (disappointment). I'm afraid that I am not fulfilling all my obligations (stress). I'm afraid that I'm going to miss something (exhaustion). I'm afraid that I'm just going to have to continue living this way. I'm just afraid period. I give myself all the same platitudes & inspirational sayings that frequent Hallmark cards & motivational posters. However, at this point I can't convince myself to believe. I've become jaded and cynical.

Today I resolved to do better. My nails (fingers & toes) are a day-glo bright pink. I'm wearing peep-toe heels (so show off my day-glo bright pink nails). I'm wearing a bright pink shirt. I've plastered a smile in my mind. So far it seems to be working, but I can feel the fear still lurking in the background. I'm trying to be confident that the day-glo bright pink is enough armour to stave off the guerrilla warfare of fear. Mostly, I'm trying to be confident that His invisible shield surrounds me and comforts me. Good luck & God bless!

Wednesday, February 16, 2011

Tomorrow's the big day!

I'm so excited! I am having my exchange tomorrow!! I'm also full of trepidation. The bad luck I've had in the past year is haunting my memory right now. There are so many risks. I know its mostly just me being paranoid, but I've got some serious bad feelings right now.

I keep mentally repeating "Oh my God, I am heartily sorry for having offended Thee. I detest all my sins because I dread the loss of heaven and the pains of hell, but most of all because they offend Thee, my God, who are all good & deserving of my love. I firmly resolve with the help of Thy grace to confess my sins, do penance, and amend my life. Amen."

Every once in a while I also mentally say, "Hail Mary, full of grace, the Lord is with thee. Blessed art thou among women and blessed is the fruit of your womb, Jesus. Holy Mary, Mother of God, pray for us sinners now and at the hour of our death. Amen."

Realistically, I know everything will be fine, but even as excited as I am, I know the risks. Whew... I'll be so glad when all this is behind me!

My Chemo-Jane hair-style

My Chemo-Jane hair-style
I just had to have my mom buzz my hair because it was falling out so badly.

Pre-op wearing my hand-crocheted cap with my prayer shawl.

Pre-op wearing my hand-crocheted cap with my prayer shawl.
My loving husband is watching me distract myself with a game on his iPhone.

2 days after my BMX w/ 100ccs in the TEs

2 days after my BMX w/ 100ccs in the TEs
I even have a fashionable belt to hold up my drains.

3 weeks post-op w/ 400ccs in each TE

3 weeks post-op w/ 400ccs in each TE
The smile is fake because the TEs were irritating!